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Quality of life in children and adults with epidermolysis bullosa: the QoL-REB explorative study

Background: Epidermolysis bullosa (EB) is a rare inherited disorder characterized by skin and mucosal fragility, with severe implications for physical, psychological, and social well-being. Research on quality of life (QoL) in EB remains limited, particularly in Italy, where systematic patient-reported outcome measures are lacking. To address this gap, Fondazione REB ETS developed a patient-centered QoL questionnaire (QoL-REB) constructed directly by patients and caregivers, with support from...

Search for low-mass hidden-valley dark showers with non-prompt muon pairs in proton-proton collisions at s=13 TeV

A search for signatures of a dark analog to quantum chromodynamics is performed. The analysis targets long-lived dark mesons that decay into standard-model particles, with a high branching fraction of the dark mesons decaying into muons. The dark mesons are formed by the hadronisation of dark partons, which are produced by a decay of the Higgs boson. The search is performed using a data set corresponding to an integrated luminosity of 41.6 fb−1, which was collected in proton-proton collisions...

Inherited rift faults as Drivers of orogenic complexity: The case of the Amora Fault System, central Southern Alps (N Italy)

Studying structural inversion phenomena is essential for reconstructing fold-and-thrust belt evolution and understanding how pre-existing structures influence their final architecture. In this study, we investigate the tectonic evolution of the Amora Fault System in the central Southern Alps, a Jurassic rift-related structure repeatedly reactivated during Alpine orogenesis. We reconstruct the multiphase history of faulting through detailed structural mapping, paleostress analyses, and microst...

Rapid Transition From High-Pressure Metamorphism to Exhumation Driven by Orogen-Parallel Extensional Shearing (Adula Unit, Eastern Central Alps)

In the Central Alps, the Adula unit exposes high- and ultra-high-pressure (HP-UHP) metamorphic rocks, providing key insights into the subduction and exhumation dynamics of the former distal European margin. We investigate the San Bernardino Shear Zone (SBSZ), a top-to-the-east extensional shear zone developed within orthogneiss and paragneiss at the top of the Adula unit, containing eclogite boudins. Using detailed structural analysis, petrography, thermodynamic modeling, and 40Ar/39Ar geochr...

Trust me, you are there: the role of verbal manipulation on embodiment and body localization

Body ownership (the perception of the body as belonging to oneself) and body spatial perception arise from multisensory integration and can be altered by body illusions (e.g., Rubber Hand Illusion, RHI). In the RHI, synchronous visuo-tactile stimulation elicits ownership over a fake hand and shifts the perceived real hand position (Proprioceptive Drift). This study investigated whether altering body spatial predictions through verbal manipulation affects ownership in a virtual RHI (vRHI). In ...

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Autore
  • PAGANONI, MARCO1582
  • TABARELLI DE FATIS, TOMMASO1537
  • RAGAZZI, STEFANO1469
  • GHEZZI, ALESSIO1447
  • GOVONI, PIETRO1441
  • DINARDO, MAURO EMANUELE1440
  • MANCIA, GIUSEPPE1419
  • DE GUIO, FEDERICO1384
  • MORONI, LUIGI1376
  • LUCCHINI, MARCO TOLIMAN1212
Keyword
  • Humans5380
  • Female2960
  • Male2611
  • Middle Aged1872
  • Adult1776
  • Italy1496
  • Aged1479
  • COVID-191232
  • Animals1045
  • Nuclear and High Energy Physics794
Rivista
  • JOURNAL OF HIGH ENERGY PHYSICS1311
  • PHYSICAL REVIEW LETTERS897
  • JOURNAL OF HYPERTENSION880
  • PHYSICS LETTERS. SECTION B697
  • PHYSICAL REVIEW D549
  • THE EUROPEAN PHYSICAL JOURNAL. C, PARTICLES AND FIELDS518
  • SCIENTIFIC REPORTS490
  • MONTHLY NOTICES OF THE ROYAL ASTRONOMICAL SOCIETY477
  • PLOS ONE452
  • ASTRONOMY & ASTROPHYSICS436
Editore
  • Springer3434
  • Università degli Studi di Milano-Bicocca2858
  • Elsevier2355
  • Oxford University Press2304
  • Elsevier B.V.2225
  • Elsevier Ltd2121
  • American Physical Society1997
  • MDPI1827
  • Elsevier BV1732
  • Springer Verlag1649
Lingua
  • eng99543
  • ita39761
  • fre937
  • spa628
  • ger228
  • por189
  • ara44
  • chi28
  • und24
  • rus20
Settore disciplinare
  • M-PED/01 - PEDAGOGIA GENERALE E SOCIALE124
  • INF/01 - INFORMATICA79
  • MED/11 - MALATTIE DELL'APPARATO CARDIOVASCOLARE65
  • IUS/01 - DIRITTO PRIVATO55
  • ING-INF/05 - SISTEMI DI ELABORAZIONE DELLE INFORMAZIONI51
  • IUS/08 - DIRITTO COSTITUZIONALE48
  • M-PSI/08 - PSICOLOGIA CLINICA47
  • M-DEA/01 - DISCIPLINE DEMOETNOANTROPOLOGICHE43
  • M-PED/03 - DIDATTICA E PEDAGOGIA SPECIALE40
  • FIS/05 - ASTRONOMIA E ASTROFISICA36
Tipologia
  • 01 - Articolo su rivista85809
  • 02 - Intervento a convegno23510
  • 03 - Contributo in libro19778
  • 04 - Monografia3003
  • 07 - Tesi di dottorato Bicocca post 20092929
  • 99 - Altro2812
  • 05 - Curatele2023
  • 06 - Brevetti317
  • 04c - Traduzione di libro158
  • 03b - Traduzione in libro145
  • 09 - Tesi di dottorato145
  • 01b - Traduzione su rivista80
  • 04b - Edizione critica - fonti inedite - commento scientifico55
  • 08 - Tesi di specializzazione16
Accesso al fulltext
  • no fulltext87846
  • open29911
  • reserved20927
  • partially open1768
  • embargoed316
  • mixed11
Progetto
  • -1844
  • DIP-ECC-DISAT-2018255
  • DIP-ECC-MATER-2018161
  • MUSA106
  • SWAB72
  • NEMO42
  • DIP-ECC-PSICOLOGIA-202340
  • DIP-ECC-FORMAZIONE-2339
  • SPARTE26
  • JUST-PARENT25